Problems with Dialysis

Last week I received a contact call from my hospital. I found out that my Creatinine and Urea numbers were bad.  By looking back at previous tests the Hospital found out that my dialysis was on the decline since I started peritoneal dialysis. They gave me a couple of options on how we could fix it in hopes to get the dialysis working. The one we decided on requires me to add an extra bag of solution to my machine hook up at night. It is called Extraneal. What happens is I continue on dialysis like normal but at the end this solution will place 1000mls into my peritoneum in the abdomen. (in layman’s terms in my stomach area of my body) I hold that fluid in my body all day and then when I hooked up in the evening the machine will drain it out.

I am not a fan of carrying around fluid all day but we are going to try this first. If it becomes a problem or doesn’t work there are other steps I can do. My fear was that I was going to be put back on Hemodialysis. Thankfully at this point that isn’t happening. I hope this step that I am about to start tonight works and I can continue with PD until I get a transplant.

Fingers Crossed!



What happens when your son is smart but lazy in school?

My 8 year old is amazingly smart, the problem? He is lazy!

He finds ways to get out of doing school work and sadly the teachers have let him get away with it. He claims he is feeling ill or has a headache. This past Monday we met with his teacher and resource teacher of finding ways to help him.

The one thing is helping him become more independent. This one is not only hard for him but also me since he is my last “baby”. You never realize how hard it is to let go until your youngest starts growing up. Then you hold on to the little things you do for him. I haven’t pushed him like I have pushed my daughter. So now he is being more responsible in the morning and surprisingly it has been quite easy. He does it with no question and now I wonder if all along I wasn’t actually helping him to move faster but holding him back by doing it. I have to say it is a bit of load of my morning schedule for him to get himself ready. I still pick out his clothes but he puts them on and then goes to the bathroom and brushes his teeth. He also receives a sticker daily at school in his planner if he had an independent day and there has yet to be a day without a sticker!!

The second thing we are working on is his printing. While he is smart his ability to write down on to paper is lacking. So each night we do a journal and he is learning to pace himself at work when writing so that everyone can read his work. He has been doing well with that as well. He does try to stall by complaining that we have to do another journal but once he sits down he does complete it.

I am hoping with just those two things it will help him with the rest of his school work. They tried testing him in school but he rushes and then the test isn’t accurate. So really the school has no idea what he CAN do because he doesn’t have the patience to be tested. My husband feels that threatening to take his PS3 away or his computer away if he doesn’t do it is the key. I think that we need to show him he needs to do it to be those wonderful careers he wishes to be. (mayor, army man, police officer)

Hopefully he finally does because then maybe they can see what I see with my son. I know he can do a lot more then they believe and it is frustrating having to hear over and over he can not when he does do it at home.

Do any of you have some problems with your children not doing what they need to at school? And how have you succeed in getting them to do the work or how are you trying to get them to do it?

My simple mistake on PD

On Friday, I was in a hurry to get unhooked from PD because we were running late and I had to get my kids to the stop in time for school.

When you get unhooked from pd, you have to close the catheter that is in your body and then close the clamp on your machine tube that connects to you. I closed the machine tube and unhooked. I did not close the catheter! Fluid sprayed everywhere (at the end of dialysis my stomach fills with 200 mls for comfort so the catheter has padding in my body) and I closed it right away!  I then got my children ready for school and sent. While I did this my husband called the dialysis unit to inform them and make sure it was okay that it happened.

From my training I knew it probably wasn’t. The catheter opening had been contaminated by air.  Sure enough, I was correct and I was informed I had to get into the dialysis unit for antibiotics. Once in the unit, they drained the fluid that was left in me. Added fluid from a twin bag (a small bag of fluid that is similar to those I place on my dialysis machine) to my drain bag and then injected 2 antibiotics into the bag that was going into me on the twin bag. (the twin bag is called a twin bag because there is 2 bags, one with fluid and one is a drain bag.) Once the fluid and meds were in my body, I had to sit for 15 mins. I have an allergy to penicillin and these meds were for those that were allergic but still could cause a reaction. I received a drain bag, masks and isogel in case there was an issue on the way home.  I had to drain right away and get to a hospital. (nothing ended up happening but at least we were prepared for it!) This fluid had to sit in my stomach a minimum of 6 hours before being drained on my dialysis machine.

The nurse doesn’t believe there will be a problem but we took care of it just in case. For the next week I just have to make sure I do not get pain or run a fever. I believe I will be fine. This is how a simple mistake could be a bad one. Hopefully I never make it again! I feel very foolish that I made this one mistake, but I figure since it is my first one and I just got the machine in July, I am doing pretty good!

Love Times Three

Last night I was sitting down to watch television and decided to watch Love Times Three on TLC.  Now most of us are no stranger to watching or hearing about Sister Wives on TLC. This show is quite similar to that show except it is a man who is married to 3 women and they all live under one roof with all of their kids. 
They discussed losing their sweet daughter Kyra and the choice to be open about their lifestyle was a tribute towards her and also towards the other children. My heart goes out to them for the loss of their daughter. 
On this episode they talked about some issues with jealousy that the sisterwives had with each other that they had to overcome. (This would be the one issue I would have with the relationship because I would be worried that my spouse would favour one wife over me.) They also shared the marriage of their daughter, Amanda. She married a man from another community and they had a wedding in the Darger family’s backyard. It looked like a lot of hard work putting together a wedding so quickly but it was beautifully done! 
I can’t wait to see more episodes of the Darger family, while I don’t practice plural marriage I do believe they should be allowed to practice without risk of the government coming in and taking away their children or jailing the adults. As long as it is between consenting adults and there is no abuse, who are we to say who in their family or marriage? 
To find out more about the Darger family check out their website Love Times Three 

Loss of a Loved One

For a child, death is a touchy subject. It is hard enough for us as adults to deal with a loved one passing on. But for a child the world they have known has ended. 
Today we had a funeral for my husband’s grandmother. While my son at 7 years old still doesn’t truly grasp what or why it happens, my 11 year old (Hayley) is another story. In the past 6 years my daughter has lost several people close to her in our family so when we told her Grams was ill, it was extremely hard on her. 
She chose to write a letter to Grams that was to be read by her older cousin. At the last minute she decided she wanted to do it. For an 11 year old it is big job. I know you are wondering why children are at a funeral. My husband and I both agreed a long time ago to allow our children the choice to be there or not. Sometimes if a loved one that wasn’t close to them passes they ask to stay home. We decided on this because we know that even children need to grieve. Some disagree with it and that is fine. You know what works for your children. 
As she read the letter she got really emotional and her cousin continued reading. When she was able to get her bearings she took over for her cousin. It was a letter of her memories of her Great-Grandmother. I know she wanted to read that not for all of us or even for herself but for her Grams. Whom she loved dearly! 
After she read that letter she came and sat in my lap and cried. As a parent it kills us to have our child in pain like that, but instead of trying to find all the right words the only thing we can do is hold them and let them grieve. 
Hayley seems fine now. She’s been laughing and chatting the rest of the day but I know in the future there may be a day she has a memory of her Grams which will make her said and her dad or myself will hold her and let her grieve. 




The Chronic Masterbakers Blog Contest

The Chronic Masterbakers Blog is having a prize pack giveaway!!!
This Prize Pack will include: 
  • A Hallmark baking ornament
  • A secret holiday recipe that will not be shared with anyone else!
  • Holiday-themed “Cookies In A Jar”
  • Decorated Christmas sugar cookies
  • Assorted holiday-themed cookie cutters
  • Assorted chocolates
  • Holiday themed sugars and quinns
  • Super-surprise #1
  • Super-surprise #2
All you have to do is go over to The Chronic Masterbakers and comment on the post and one other blog post. It’s that simple!
You can also earn extra entries which is listed in the contest rules! Winners will be chosen randomly on Dec 12/12!
Good Luck!!



Wisteria (Book #1) by Bisi Leyton Book Review for Blog Tour

Summary by Goodreads:

Sixteen year old Wisteria Kuti has two options—track the infected around the Isle of Smythe or leave the only known safe haven and face a world infested with flesh eating biters. But even with well-armed trackers, things go wrong and Wisteria ends up alone facing certain death, until she is rescued by the mysterious Bach. Uninfected, Bach is able to survive among the hordes of living dead.

Eighteen year old Bach, from a race known as The Family, has no interest in human affairs. He was sent here to complete his Great Walk and return home as a man—as a Sen Son. The Family regard humans as Dirt People, but Bach is drawn to this Terran girl, whom he has never seen before, but somehow knows.

Hunted by flesh eaters, cannibals, and the mysterious blood thirsty group called Red Phoenix, Wisteria and Bach make their way back to the Isle of Smythe, a community built on secrets and lies.

My Review:

This book is great for teens and adults who love zombie books or suspenseful books.

I found that even though it was a slow start, once it did get started it had everything that a reader wanted in a zombie story.  I love that Bisi Leyton showed Wisteria as a strong young woman. I do hope the next book that they elaborate more on Bach and his background. I love the two characters (Wisteria and Bach) banter back and forth in the book. And hope to see more in the second book! The only downfall to this book is the slow start but that may be due to needing to establish the characters. A great read that I will probably read again!!

I give this book 4 1/2 stars!

**I received a free copy of the book from the author for my honest opinion**