Last week I received a contact call from my hospital. I found out that my Creatinine and Urea numbers were bad. By looking back at previous tests the Hospital found out that my dialysis was on the decline since I started peritoneal dialysis. They gave me a couple of options on how we could fix it in hopes to get the dialysis working. The one we decided on requires me to add an extra bag of solution to my machine hook up at night. It is called Extraneal. What happens is I continue on dialysis like normal but at the end this solution will place 1000mls into my peritoneum in the abdomen. (in layman’s terms in my stomach area of my body) I hold that fluid in my body all day and then when I hooked up in the evening the machine will drain it out.
I am not a fan of carrying around fluid all day but we are going to try this first. If it becomes a problem or doesn’t work there are other steps I can do. My fear was that I was going to be put back on Hemodialysis. Thankfully at this point that isn’t happening. I hope this step that I am about to start tonight works and I can continue with PD until I get a transplant.
Well a lot has happened this summer that caused it to go by quite fast! After my PD surgery. I had training to use the machine for a week.
What the machine does is it drains me first to make sure all fluid is out of my cavity, then fills me up with fluid (I am on 2000 ml now each fill) and sits for an hour. Then it drains out and fills me up again. This is done for 6 cycles a night. At first the draining hurt. They stated it was because it was new. They were very correct because now it feels like intense hunger pains. I can handle that feeling and I have no problem sleeping through the draining. (it only happens at first and last drain) I am loving PD Dialysis now because it doesn’t drain me the way Hemodialysis does. After Hemo you can barely move. You feel worn out in ways I can’t even begin to explain. And at the same time you are insanely hungry.
Just a week ago I had my perm catheter removed from my chest. This was done by freezing needles. Sadly the freezing didn’t take for me (i don’t know why because the last time it did) and I felt the scalpel. The doctor then placed in 2 more needles. I was frozen but still felt pain due to doctor hitting a bone during removal. It hurt a lot. But nothing really serious went wrong so I am thankful. I did cry like a baby though. Thankfully I wont need this catheter placed back in.
Now I am just enjoying life and spending time with my family. I am now able to help out at the school more and being more involved with the kids. It is such a different story from last year when I was too tired to move most days.
The nice thing with a great Sunday dinner is some buttermilk biscuits!
This recipe is quite easy to follow and make!
3 cups plain, all-purpose flour
1 tablespoon sugar
1 tablespoon baking powder
1/4 cup cold Crisco® Zero Grams Trans Fat Shortening
2 tablespoons no-salt margarine, cold, cut into bits
1 1/3 cups buttermilk
Preheat oven to 450 °F. In a bowl whisk together flour, sugar and baking powder.
Cut cold shortening and margarine with a pastry blender until mixture resembles coarse meal. Then stir in buttermilk to form a soft dough. With floured hands knead dough gently eight times in bowl. Flatten dough to a 3/4 inch thickness. Using a 2-inch biscuit cutter or glass dipped in flour, cut out biscuits. Place biscuits about 2 inches apart on an ungreased baking sheet. Gather the trimmings to make the final biscuit. Bake biscuits on the middle rack of the oven for about 12 to 15 minutes or until golden brown.
You can also jam to the ingredients for a different flavour. If you are on a dialysis diet like me try to find low potassium jams like cherry, pineapple or blackberry to add to the mix.
One recipe makes 12 biscuits
From time to time on this blog I will speak about my journey. I currently have kidney failure which they believe to be called Alport disease. The disease not only affects my kidneys but also my hearing. It can also affect eyesight but I have yet to have that issue.
Last Wednesday I went for surgery to have a tube placed in my stomach. It allows me to have dialysis in the home. It is done with fluid instead of my blood.
First they placed IV in to me and started the antibiotic along with some gravol. When they gave me gravol it made me very calm and put me to sleep. I slept for an hour and then I was told it was my time for surgery. I had make sure my bladder was empty. By then the gravol was done and I was awake. I was wheeled into a room that looked like a cross between a xray and ultrasound room. They placed me on the table and started to prep. While doing so I was freezing so they gave me blankets.
They had hooked me up to morphine and a sedative which allowed me to be awake when they needed to me but also allowed me to be calm enough to sleep. Then about 30 mins into it they started the process. Which meant they stuck me with 6 freezing needles. I screamed quite loud throughout this process. I am not one for needles. Then they begain the process, I was quite out for most of this until they asked my to puff out my stomach. They watched on a screen to make sure the tube was placed in the correct spot. Then after 2 and a half hours, they sewed me up and sent me to recovery.
I was in recovery for an hour while they checked my blood pressure every half hour and my body temp. Then I was able to go home.
I had my first flush this past Wednesday and have to give myself 2 more next week. I also learned how to change my dressing as I have to do this daily. The plus side on all this is in 2 weeks I will be able to do dialysis in my own home as well as be able to travel.
It is another hurdle that I have jumped and hopefully one more to recovery! Next step, getting home and then putting myself through testing to be placed on transplant list.